Welcome ceremony of the exhibition The Gene Age at its second stop took place at Motol University Hospital

On Monday, 6th of November, our Gene Age exhibition has been welcomed at its second stop at the University Hospital in Motol, where it will be on display until 1st of December in the headquarters building on the ground floor in front of the large lecture hall.

A number of experts accepted our invitation to the opening. We are very pleased that we jointly defined other areas than the usual ones where patients and patient organisations can be of benefit. We believe this is another step towards a cure for our angels and other rare patients. We also agreed on the importance of taking a European approach on tackling rare diseases.

Our invitation has been accepted and our thanks go to:

– Mr. JUDr. Miloslav Ludvík, Director of Motol Hospital,

– Prof. Milan Macek, Leaders of the Institute of Biology and Medical Genetics of the 2nd Faculty of Medicine of Charles University and Motol University Hospital, and MUDr. Markéta Havlovicová,

– Associate Professor Radislav Sedláček, Director of the Czech Centre for Phenogenomics, who has been conducting research on Angelman syndrome for the past five years,

– MUDr. Alena Zumrová, member of the expert council of the Association of Gene Therapy, z.s,

– Ing. Ondřej Knotek, who deals with rare patients at the European level in Brussels,

– Director of AIFP – Association of Innovative Pharmaceutical Industry Mgr. David Kolář,

– Anna Arellanes, President of CAVO,

– David Procházko, founder and director of Donio

– and last but not least our dear Ing. Alexandra Udženija, Deputy Mayor of the Capital City of Prague. Prague for her long-term support.